Gabara Moneo, Irene (2024) Quality of life assessment with an adult with congenital deafblindness: A Person-Centred Approach. Master thesis, Pedagogical and Educational Sciences.
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Abstract
Abstract Background: Traditional methods assessing quality of life in adults with deafblindness often rely on caregiver reports, limiting the individual's active participation in the evaluation process. Research Question: This study aims to develop a method to assess the quality of life for an adult with congenital deafblindness, ensuring the central role of the participant in the assessment. Methodology: A single-case study design was used, applying a phenomenological approach. The participant, a 27-year-old with congenital deafblindness, engaged in a structured interactive session using a whiteboard, inspired by the Talking Mats tool. The session aimed to facilitate self-expression through visual prompts, with verbal and non-verbal communication analysed using qualitative coding in ATLAS.ti. Results: The participant actively participated in the self-assessment, sharing preferences and emotions, particularly in the areas of physical well-being, relationships, and activities. Physical well-being emerged as the most discussed aspect, frequently linked with negative emotions. Discussion: This study demonstrates the potential of Person-Centred, interactive tools to facilitate self-assessment for adults with congenital deafblindness. While the method provided rich, qualitative data and empowered the participant, it is time-consuming and limited in its generalizability. Keywords: Deafblindness, Quality of Life, person-centred approach, self-assessment, Communication tools.
| Item Type: | Thesis (Master) |
|---|---|
| Supervisor name: | Cantell, M.H. |
| Degree programme: | Pedagogical and Educational Sciences |
| Differentiation route: | Deafblindness [Master Pedagogical and Educational Sciences] |
| Date Deposited: | 29 Oct 2024 14:36 |
| Last Modified: | 29 Oct 2024 14:36 |
| URI: | http://gmwpublic.studenttheses.ub.rug.nl/id/eprint/4431 |
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